Since its inception in 1992, the SLBCC has been actively involved in influencing legislation and securing funding which has resulted in:
Access to timely diagnosis and treatment for indigent women through the Breast and Cervical Cancer Treatment Act.
Transitional coverage for certain cancer drugs, based on the Access to Cancer Therapies Act.
Passage of the Medicare Cancer Clinical Trial Coverage Act.
Improved mammography standards through the Mammography Quality Standards Acts and subsequent Reauthorization Act.
Increased federal funding for breast cancer research by more than 600 percent in just 15 years.
An unprecedented peer-reviewed breast cancer research program within the Department of Defense which supports innovative and productive research, and has received more than $2 billion in funding thus far. This is a priority each and every year for SLBCC. To learn more about this, go to the DOD Breast Cancer Research Program.
We are very interested and involved in the Health Care Reform initiatives in Congress. As this plays out, we are urging legislators to include trained patient advocates on all boards, committees and panels who are making decisions regarding this issue. Patient advocates – members of the lay public who are educated and trained – can play an integral role in ensuring that the health care system is responsive to the needs of the medical and scientific communities, as well as health care consumers.
Worked for 6 years toward the passage of the Breast Cancer and Environmental Research Act (BCERA). In 2008 members of Congress amended the original version and passed a substitute bill that no longer met the goals or intent of the original bill. The bill that was enacted into law did not include any of the elements of the bill that NBCC had been working for years to pass, and that two-thirds of Congress supported. While it may be a tool we can use in a small step toward reform, it ultimately misses an opportunity to create an innovative model at NIH that could potentially lead to the answers we so desperately need regarding breast cancer.
To renew the sense of urgency to its mission and to refocus global efforts on ending breast cancer and saving lives, the National Breast Cancer Coalition has set a deadline. End breast cancer by January 1, 2020: Breast Cancer Deadline 2020®. NBCC has a strategic plan of action to achieve the deadline. The plan focuses on primary prevention (stopping women from getting breast cancer), and understanding and preventing metastasis (the spread of cancer), which is responsible for 90% of breast cancer deaths. To learn more go to NBCC About the Deadline.
In 2011, NBCC worked with key legislators to introduce the Accelerating the End of Breast Cancer Act in the U.S. Congress. This bill defines an important role the federal government must play to reach the Breast Cancer Deadline 2020® goal of ending breast cancer. Advocates worked throughout the 112th Congress garnering co-sponsors for this legislation; however it was not enacted into law. NBCC is continuing work to introduce and pass this bill in the 113th Congress. To learn more go to NBCC Legislative Priority #1.